Government Regulatory Agencies and Healthcare Policy Initiatives Pathway
Government Regulatory Agencies and Healthcare Policy Initiatives
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Patients as Co-Authors
Patients are increasingly co-authoring peer-reviewed publications at all stages of the medicines development life cycle. Their unique insights enhance the body of evidence across numerous therapy areas. Practical guidance can support patient authors to publish successfully and collaborate with non-patient authors. 2020: Researchers and patient partners from the Strategy for..Read More
Pharmaceutical Companies Expand the Role of the Patient Advisory Panel
2020: Bristol-Myers Squibb (BMS)We are a global biopharmaceutical company whose mission is to discover, develop and deliver innovative medicines that help patients prevail over serious diseases. www.bms.com initiates PEER (Patient Expert Engagement Resource) PEER ensures that the patient perspective is heard and considered at every step of the drug discovery..Read More
Rheumatology Registries and Research Front and Center
With the onset of the global pandemic of COVID-19COVID-19 is the disease caused by SARS-CoV-2, the coronavirus that emerged in December 2019. www.hopkinsmedicine.org/health/conditions-and-diseases/coronavirus , rheumatology registries - come existing and some forming solely for this reason - began focusing strongly on tracking cases in rheumatology patients. Some of these registries..Read More
Shining a Light on Health Equity, Diversity, and Inclusion
2020: COVID-19 brought to light many inequalities in healthcare, including disparities based on socioeconomic factors and societal structure. In the United States, the realities of systemic bias and structural racism emerged, presenting the opportunity to increase efforts to advance health equity - and work to eliminate health inequities nationwide. 2020:..Read More
Patient Involvement in Basic Rheumatology Research
While patient inclusion in rheumatology research has advanced considerably over the last decade, engagement in the basic science phase of research is lacking. However, efforts are underway to explore opportunities for patient-researcher collaboration at the laboratory setting. 2022: A study by the department of rheumatic diseases of the Radboud University..Read More
Patient Led Guidance to Help Researchers Improve Collaboration
Given patient inclusion as part of the research team has been around, in some cases, for a quarter of a century, those patients who have been involved in these activities for some time help guide researchers on best practices. The Saskatchewan Center for Patient-Oriented Research (SCPOR)A partnership of organizations..Read More
1st Scientific Session at ACR to Assist those Designing Patient-Included Rheumatology Research Projects
While patient engagement as partners in rheumatology research has been a staple at scientific conferences in both Europe and Canada for years, until 2022, the topic has had little focus at US-based scientific research conferences. 2022: The ACR Convergence meeting features the 1st scientific session of its kind to help..Read More