RESEARCH CONTEXTS

Contexts are general categories or topics associated with the research. If you want to search for examples of collaborative projects (*in rheumatology) that involve children or lay summaries, for example, use the Context Glossary. 

*Not all entries on the Pathway are rheumatology specific – like initiatives by the European Medicines Agency (EMA) or PCORI – but were necessary to include because collaborative projects in rheumatology evolved from this work.

PLEASE NOTE – The Pathway is a living tool and this initial framework is limited to submissions provided by our original ACTion Council team through December 2020. If you think you have projects, examples, or case studies to submit, please read our submissions guidelines before completing the application.

 

Assessing grant applications

Children

Clinical Effectiveness Research (CER)/Decision Science

CER compares the effectiveness of two or more interventions or approaches to health care, examining their risks and benefits. CER findings assist clinicians, patients, and other stakeholders in making informed decisions that improve health care. Comparing two or more interventions distinguishes CER from other types of clinical research. It can both validate a particular intervention and identify which treatments best meet a certain population’s needs.

Clinical Trials

Core Outcome Sets (COS)/Core Outcome Measures

A COS is an agreed standardized set of outcomes that should be measured and reported, as a minimum, in all clinical trials in specific areas of health or health care. This approach reduces heterogeneity between trials, and leads to research that is more likely to have measured relevant outcomes. Importantly, it enhances the value of evidence synthesis by reducing the risk of outcome reporting bias and ensuring that all trials contribute usable information.

Decision Aids

Patient decision aids are tools that help people become involved in decision making by making explicit the decision that needs to be made, providing information about the options and outcomes, and by clarifying personal values. They are designed to complement, rather than replace, counseling from a health practitioner.

Dissemination (Knowledge Translation)

Process of translating information in an understandable and meaningful way. Knowledge translation (KT) is defined as activities involved in bringing research evidence to various audiences in a useful form so it can be used to support decision making and improve practices.

Ethical Review

Guideline Development

Health Technology Assessment (HTA)

Lay Summaries

A brief summary of a research initiative that has been written for members of the public, rather than researchers or professionals and that explains any technical terms that have to be included.

Measuring Impact

Patient-Powered Registry

Patient registries are defined as an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves a predetermined scientific, clinical, or policy purpose(s) (REFERENCE: Agency for Healthcare Research and Quality, 2010). In patient-powered patient registries, patients and family members “power” the registry by managing or controlling the collection of the data, the research agenda for the data, and/or the translation and dissemination of the research from the data.

Patient-Reported Outcomes (PROs)

PROs are defined as any report of the status of a patient’s health condition that comes directly from the patient, without interpretation of the patient’s response by a clinician or anyone else.

Poster Presentation

Precision Medicine

Qualitative Research

Registries (also See Patient-Powered Registries)

Regulatory Process

Research & Development

Study Groups

Systemic Literature Review

Systematic reviews are like scientific investigations in themselves, using pre-planned methods and an assembly of original studies that meet their criteria as ‘subjects’. The systematic reviewers synthesize the results of an assembly of primary investigations using strategies that limit bias and random error.

Value Based Health Care

Young Adults

Pathway Organization


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