While patient engagement as partners in rheumatology research has been a staple at scientific conferences in both Europe and Canada for years, until 2022, the topic has had little focus at US-based scientific research conferences.
- 2022: The ACR Convergence meeting features the 1st scientific session of its kind to help attendees improve patient involvement as partners in their research projects. Presentation of this Pathway of Patient Engagement in Rheumatology Research Tool designed by the ACTion Council.
- Attendees – including researchers, rheumatologists, patient research partners, and representatives from scientific societies, patient organizations, and industry – worked together post session to build out the tool to create the most robust repository of patient included rheumatology research to date. (TBD)
CoPI: Patient Research Partner, conference participant, Co-production of stakeholder groups
Tools: Instruments – Patient-Researcher Engagement
Context: Research & Development