While patient inclusion in rheumatology research has advanced considerably over the last decade, engagement in the basic science phase of research is lacking. However, efforts are underway to explore opportunities for patient-researcher collaboration at the laboratory setting.
- 2022: A study by the department of rheumatic diseases of the Radboud University Medical CenterRadboud university medical center specializes in patient care, scientific research, teaching and training. Our mission is to have a significant impact on health care. We aim to be pioneers in shaping the health care of the future. We do this in a person-centered and innovative way. https://www.radboudumc.nl/en/research/, which included thirteen Patient Research Partners (PRPs)Patient Research Partner (PRP) EULAR defines a Patient Research Partner (PRP) as a person with a relevant disease who participates or has participated as an active research team member on an equal basis with professional researchers, thus adding the value of experiential knowledge to a research project. explored good working models and impact of patient involvement in basic rheumatology research and to identify barriers and facilitators (report)
. Associated road map for patient involvement in basic research also provided . - 2022: With the emergence of precision medicine in rheumatology, basic scientists are exploring potential biomarkers that may be associated with diagnosis and potential worsened disease outcomes or harmful side effects. Patient groups have been collecting this research for use in efforts to influence public policy (Research AdvocacyConducting research and collecting data that can be used to influence legislation or public policy.), particularly advocating for access to biomarker testing in the future.
Tags
CoPIs: Patient Research Partners, Patient and Public Involvement in Research, Research Advocacy
Tools: Reports – Patient-researcher engagement, Guidance documents – patient-researcher engagement
Context: Basic research, precision medicine